Feeling Hopeful Again

New hip rehab is no joke and it’s taken me a while to return to blog posting.  But that’s not because things aren’t going well - quite the reverse, in fact.  I’ve started a whole bunch of posts and those half-written thoughts will become fully-developed posts in the coming days.  For now, let me simply note that I am back - whole and relieved and - most important of all - finally feeling hopeful again.  In time, I will wrestle with the complicated thoughts I have about what my life felt like as I waited for hip surgery.  I will post some serious thoughts about the gratitude I have for my sister and JT, who got me to the surgery and then through it to this other side.  All of that and more is coming.  I’m back, world, and I’ve got a lot to say!

Valentine, Party of One

Last week, I had one of those spiraling days of doubt that occur every once in a while.  It was Friday and I was physically and emotionally spent.  The pain and disability of my hip caught up with me like a fury spinning wildly.  Days like that are hard when you are a without a partner and I’ve had far too many of them lately.  The fact that the Valentine’s Day sucker-punch was just around the corner didn’t help. My sister’s support, some rest, and a good book got me over the hump. 

Today is Valentine’s Day and though I suspect I will forever be sad that I never found a partner willing (or able?) to love me through the hard parts of a relationship, I’m not dwelling on that.  I have Valentine treats for some friends and big plans to score some flowers for myself once I have a new hip and can walk into the shop and select a bouquet. As of today, I am 7 days from surgery. Tonight, I’ll open the Valentine treat I bought myself, raise a toast to me and getting through the hell of the last 6 months, and I'll remind myself that I am tough as nails when the need arises.  That will make for a sweet -  if untraditional - Valentine's Day and I'll take it.

Style Journal: Making My Peace with Pants

 As an adolescent - really as a tween - I learned that some clothes and styles were off-limits because of my weight.  Once the dreaded "not flattering" concern was uttered by my mom and grandmother, extreme self-consciousness set in.  A fear of being too fat, and therefore unworthy, took hold.  I remember dieting at the age of 12 when I weighed all of 125 pounds and was 5’3”.  After age 12, I didn’t go to public places where swimsuits were being worn.  Rather than reject the message that I was unworthy because of my body, I molded my life around the limits sent by that message.  For more than 25 years, I mostly refused to wear pants or shorts because I could not stand my appearance in them.  This avoidance continued long after a therapist explained to me that I have body dysmorphia.  She helped me to develop the tools to manage the feelings brought on by the dysmorphia and though I still experience an inaccurate view of my physical appearance, I understand it to be a thing that I don’t have to believe or accept.  So the dysmorphia exists away from my sense of self.  

All of this is relevant because my current disabled status has made pants a rather valuable asset in my world.  In the Winter, I wear tights with skirts and dresses.  But as my hip disability has worsened, the process of putting on tights in the morning became difficult and then unbearable.  This  weekend, I gave up Winter tights in exchange for pants.  They are loose-fitting pants - in a size too large, as is my way - but putting them on is manageable and doesn’t aggravate my crummy hip.  I think that the transition to pants has been made easier by the abundance of wide-leg styles.  I regularly buy clothes that are too big (see: coping with body dysmorphia) and wide-leg pants are a style gift.  I like them in various forms, though especially soft, flowy knits — pants my sister has named “dress sweats.” I think I will love them even after my hip has been fixed.  I’ll not call that the silver lining of the misery - there is not silver lining enough for what I’ve been through - but it is something.  

On Not Wishing Away Time

It has taken more than half my time on earth for me to learn the lesson that I must embrace life when and where it happens and not wish it away.  I learned the lesson the hard way, mostly after I conceived my son nearly 25 years ago.  By then, I’d spent a lifetime believing that there were things I couldn’t do or have because of who I was: a fat lesbian and a smart woman who scared the shit out of patriarchy.   Limits were set by society and for many years I accepted some of them. Becoming a mama was something I feared would be unavailable to me.  Against that particular perceived limit, I fought back.  When I became pregnant, I vowed that I would raise a child who always knew his value and worth and needn’t wait to love, or be loved, or live the life of his choosing.  In the subsequent years, I learned to take on other limits and not feel that I had to wait to enjoy the full measure of life.  I came to embrace wearing a swimsuit despite my imperfect thighs.  I came to love doing things on my own: movies, dining out, going to the gym, going to parks and museums on my own, even vacationing by myself.  If I wanted to do it, I could and I did.  It was empowering.

Then came the wonky hip.  Since last August, when the pain became suddenly unbearable, I have faced a world of limits brought on by doctors who denied me care because I’m fat.  I’ve rarely been a fan of modern medicine and this circumstance has turned my lack of enthusiasm into palatable dislike and distrust.  I am a woman who does not hate but if I made an exception to that rule, it would be for the medical field, which has almost never been my ally.  As I restricted food to lose weight and qualify for the hip replacement surgery everyone agreed would cure me, my dislike of doctors grew as their withholding of treatment shrank my world.  I resisted as much as I could but pain and sleeplessness are a toxic combination.  The last 6 months have mostly been miserable.  No longer able to walk very far, I have been confined to a life of home and work, my independence limited outside of my home (and even within it….going downstairs to do laundry is very hard for me; everything takes longer when you are disabled and in near-constant pain).  I have found myself wishing away my current existence in exchange for a future when things will be better, the exact approach to life I rejected so many years ago.  

With just under two weeks until surgery, I finally see light at the end of the tunnel.  With a hip replacement, I believe I will regain my independence.  I will once again be able to live my life on my terms.  Whether I will be able to let go of my anger at the 6 months of my life lost because of the denial of medical treatment remains to be seen. I’m only 56 years old.  I have many years left on earth, though not so many that I welcome my time being wasted by doctors who don’t seem to understand what an oath like “do no harm” actually requires of them.

Among the Trees: Sunshine & Hope

Most of January was damp and cold.  We had a smidge of snow - enough to earn a snow day - but mostly we had endless grey skies and rain.  I find January is a bleak month anyway, what with its late sunrises and early sunsets, but add in gloomy grey skies and my growing hip discomfort and the month had little to recommend it.  February was less than 48 hours old when it delivered blue skies and sunshine.  Though the cold persisted - it’s still Winter - the sun was welcome.  It’s also true that our days are lengthening, with an extra minute of sunlight morning and night and that helps.  Normally, Winter walks sustain my soul but my temporary disability has robbed me of that comfort.  On Saturday, when I could sit out in the back deck and turn my face to the sunlight, for a still-chilly 30 minutes, I felt hopeful.  I’m two weeks away from surgery and I am so ready for the return of walks in the woods.  Until then, I've had some sunlight and it was glorious.

The Countdown Continues

On Monday morning, I taught my classes and when I returned to my office, there was an e-mail from my surgeon’s office: my hip replacement was delayed, likely to February 28.  I was appalled.  It took a day of back-and-forth with the office, before we landed on a one-week delay.  Now my surgery is on February 21.  I’ve been waiting for relief since September and strictly speaking another week is just that - 7 more days - but it was another blow in an already demoralizing journey.  I made a last-minute appointment with my pain doctor to renew the meds that help me to get some sleep, updated my supply of ibuprofen and Tylenol for daytime support, adjusted my countdown calendar, and got back to life.  Today I have two pre-op appointments: testing at the hospital and a visit with the surgeon’s office.  Next week, I'll see my primary care doc for surgery clearance.  With 19 days to go, I am lslowly imping toward the finish line.

February 1: Cardinal in the Backyard

Years ago, my taught me that the sight of a cardinal was a visit from a loved one who had passed; a sign that all was well in the great beyond.  When I saw this cardinal on the fencepost in my yard a few weeks ago, I was glad.  

Tomorrow will be a year since my Dad’s passing.  I miss him.  I miss his voice on the phone; I miss his to-the-point e-mails; I miss his jokes and his laugh.  It’s hard to believe that we’ve been a full season of life without him in this world.   I can hear his political commentary in my mind, see him in my growing plants and garden plans, think of his outsized joy in his grandsons. I remember him by telling stories about him or using a patented dad-phrase.  It’s not enough - it never will be - but the memories are of a  man who loved and was loved; who had a good life.  That’s happy.

Monthly Book Report: Rules of Civility

This blog is now an Amor Towles appreciation blog.   

For the second month in a row, one of Amor Towles novels is the  source of my end-of-the-month book report.  This time, it’s Towles’ first book: Rules of Civility.  Set in 1930s New York, the novel is a reflection on the rules of old wealth and the world of hard-working young women seeking a better life.  The narrators Katey, the daughter of a Russian immigrant, who is making her way up the social ladder.  Together with her friend Evelyn, Katey befriends a young man, Tinker Grey, whose wealthy status and mysterious background mask his truth.  In the course of one year, 1939, that truth reveals itself.  

The story is told at a leisurely pace, never slow but not hasty.  The reader comes to enjoy the company of Katey and her keen observations and the story is layered with mystery.  Towles’ writing shows an eye for observation and nuance.  In Katey is a narrator who tells the truth as she sees it, with a hint of sarcasm that never feels careworn or mean.  The writing is simply first-rate and I loved the novel.

Countdown Mode

Today marks my last 5 day week of school before surgery.  Next week, I have pre-op appointments on Friday; the week after that features another pre-op appointment on Thursday (side note: pre-op is just code for running up the cost for surgery) and the week after that is go-time.  Mornings are brutally difficult for me - getting dressed alone takes me half an hour.  I’m up at 5:15 am, not to enjoy my morning coffee and watch the sun rise, as was my old habit, but simply to get my crap together so I can leave for work by 7:15.  

This reality of being disabled caught me by surprise.  Because I had never had to walk this path, I hadn’t released how difficult it is to try and live a normal existence when one is disabled.  I expect to reflect on that when I get to the other side of this chapter.  For now, suffice it to say that the abled world gets to take a lot for granted. 

Plenty of people have encouraged me to take a few extra days off to ease the burden in advance of surgery.  I appreciate the idea.  But I like my job and these days it is literally the only thing I do outside of home.  I go to work, I drive to pick up groceries that the store shops for me, I go to the library every third Saturday.  That is the sum total of my existence.  So by-passing a day at school to avoid the morning struggle has costs on the other side.  My world has already shrunk and I don’t wish to shrink it further.  These days, as things are growing harder, I’m just grateful that the surgery date has hovered into view.  I am counting the days.

Cooking Journal: January in Food Restriction Mode

It is an established fact that I love to cook.  When I was denied a hip replacement until I could achieve a qualifying BMI score, my world - already being shrunk by my growing disability - shrank even further.  Once a woman who read new recipes and tried the ones that sounded good, I was now a woman who could only eat 800-1200 calories a day.  Briefly, that level of food restriction took the joy out of cooking.  Then I resolved to be on the lookout for recipes that were delicious and manageable with my restrictions.  Spinach, broccoli, and carrots were my friends, packed with vitamins and fiber to be filling.  I upped my fruit and veg consumption from 4-6 daily servings to 5-7 and used intermittent fasting on the daily so that with the exception of coffee, I didn’t eat between supper and noon the next day.  Lunch was confined to less than 300 calories.  That saved some space for supper, where my plate could be anywhere between 500 and 800 calories, allowing me to continue to try new recipes, even those that did not strictly fit low calorie specifications.  Cooking was physically hard (see: hip disability) but became enjoyable again from planning point of view.  We ate pretty well in the past month, thanks to my cooking skill and desire to try new things. 

I offer this information not as an endorsement of diet culture or food restriction.  They are physically and emotionally destructive, the biggest predictor of the development of disordered eating, and unlikely to reduce weight in the long run.  Bodies need nourishment and kindness; diet culture and food restriction denies both of these important things.  Medical science should know this but orthopedists are not very enlightened when it comes to weight and I was forced into food restriction. When my new hip is installed, I will keep to my daily food and veggie commitment but look forward to renewing my relationship with cheese, which I have missed terribly, nearly as much as I have missed being able to walk more than a few minutes a time.  

Embracing Barbiecore

There is an inevitable moment in the Winter season when I have had enough of the cold and snow.  When it happens, I turn to pink sweaters to see me through to the day in March when I will pack up my Winter tights and wool sweaters and declare Sassafras Spring.  That moment of Winter weariness came earlier than usual this year - likely because the cold aggravates my already unhappy hip - and last week I began to actively fantasize about Spring.  Usually I get through the last week of February and start of March by wearing cozy pink sweaters.  This year, the pink sweaters will start before Valentine’s Day.  For starters, I’ll be off work for my surgery.  Without the need to appear sensible at school, I can sit around home wearing whatever I damn well please.  And what I please is looking to be a whole lot of pink. 

Gratitude Journal: January 15

With luck, one month from today, I will be on the other side of the hip replacement surgery that has occupied my every thought since the pain first became constant last August.  When I received a surgery date earlier this month, my heart opened up to the idea that I won’t have to live in the small world of crippling pain forever.  The relief I feel at having a surgery date is palpable. Aside from the pain and disability of the last 6 months, the way the situation has untethered my general optimism has been hard to bear.  It will be a good long while before I recover from the mental health disaster of draconian food restriction brought on by the requirement that I lose weight to receive medical treatment.  Being denied much-needed healthcare because of weight, especially in the absence of scientific research to support such cruelty, is appalling.  I don’t expect that I will ever again trust a doctor.  When I have seen to my recovery, I intend to speak out about the injustice of the whole situation. 

 For now, I am focused on getting to my February 14 surgery date.  And I am incredibly grateful to my son, my sister, my family members, and the friends who have helped me to get to this point and who will see me through to the other side of surgery.  Their help and willingness to celebrate the surgery date have been an incredible bright spot in this very hard patch.  My heart is full of gratitude for them, aware that I could not have made it this far alone.

Sister Act

Today is my sister’s birthday.  I’m the oldest and when we were little girls, she used to threaten that one day she would be older.  I like to think that I was gracious about this - confident that time and space were on my side - but we’ll need KO to confirm that.  As adults, I joke that there was a screw up in the birth order continuum, because she’s the level-headed family general and we march to her orders.  That’s fine by me: she’s smart and funny, sensible and loyal and when my hip went suddenly south in August, she was unfailingly the solid rock that I needed. She put up with endless whiny texts and phone calls and was supportive and sympathetic, whatever the circumstances required.  The harder things got, the more she stepped up.  It is no exaggeration to say that I wouldn’t have made it this far into the journey without her good cheer and good sense.  Before I could summon the courage to ask, she volunteered to come East and look after me post-surgery.  That right there is KO in a nutshell: she knows what you need and she will get it done.  She is the very best sister a woman could ask for and I love her beyond measure.  

Happy Birthday, KO!

The Magic 8 Ball Delivers

My office in the Middle School has a Magic 8 Ball, which mostly serves as a source of comic relief.  When a visitor asks about it, I explain that it’s the primary decision-making agent of the Middle School and then we all laugh.  But this '70s era toy brings amusement on the daily and I should show more respect to the Magic 8 Ball.  On Tuesday, thoroughly fed up with my lack of a surgery date, I shook the 8 Ball and asked if the scheduler would call today.  The 8 Ball answered, “It is certain.”  I responded with a smart ass remark and then limped my way to class.  But you know where this story is going...at mid-day, the scheduler called.  She was all business, with pre-op appointments and a surgery date. 

February 14. 

Valentine’s Day has little charm when you are single but you can be damned sure that I will be celebrating this year.  

Style Journal: Sassafras Shelf

My first house, in Nebraska, had a beautiful fireplace with a mission-style oak mantle.  I loved the mantle and enjoyed decorating it.  The items on it reflected all sorts of seasonal decor: flowers in the Summer, pumpkins in the Fall, Christmas stockings and greenery, my collection of hand-carved bunnies in the Spring.  My first house in New Jersey did not have a fireplace or a mantle and an antique table in the living room served as an improvised mantle of sorts.  Sassafras House, which has been home since 2006, has beautiful chestnut wood work and oak floors but there is not a fireplace or mantle.  The antique table wouldn’t fit in the living room and over the years I have improvised a place for seasonal decor.  Sometimes I used the wood radiator cover in the living room front window.  For a few years, I had a mantle shelf.  But I have been on the hunt for a better set up.  For years, the shelf below the TV held the cable box and DVR.  When I gave those up for Roku streaming, it freed up the shelf.  And just like that I had my mantle equivalent.  This month, it has some of the wooden houses in my collection and light from a digital candle that flickers in a hobnail glass jar.  As the seasons change, I enjoy planning a new display for the shelf, which has become a little corner of happy in my world.

Return of the Bullpen

 Last night found me back to form, completing my Sunday night chores to be ready for the school week.  I organized my school bag, changed the sheets on my bed, watered my pants, and got the bullpen ready. 

These habits are the glue of my world and help me to feel organized and ready for what the week will bring.  These days, when daily living is hard because of my (temporary!?!) disability, I am grateful for the order of these established habits.  

Worthy

At the December 15 appointment where the surgeon qualified me for the hip replacement surgery I desperately need, I was instructed that I could expect surgery in 6 weeks and that the scheduler would be in touch within 10 days.  When 10 days without a call passed, I called the scheduler.  She was polite but had no date - or even a prospective date - and indicated that I’d have a four week lead when she finally got me on the calendar.  It’s been three weeks since that first appointment; and more than one week since I called the scheduler.  I still don’t have a surgery date. 

The joy and relief I felt on December 15 has begun to wane.  As each day without a surgery date comes to a close, I make the struggle upstairs to bed where in the quiet darkness, I fend off the waves of despair that I feel.  With the help of my amazing pain management doctor, I can get some rest, but I haven’t had a full night of sleep since August.   January 16 will mark the start of my 6th month of living with crippling hip pain.  Over the last 5 months - 5 months - I’ve learned some tools to manage the disability.  But my world is small.  I go to work and then I come home.  Once home, I mete out the last of my energy to cook supper or run a load of laundry.  Groceries must be picked up as I can no longer walk through the store.  JT is indispensable; he does the bulk of our household chores while also trying to keep my spirits up.  He is my daily source of gratitude and grace and he never complains about helping me. Walks outside, a trip to the movies or a bookstore or to a cultural event are simply not an option.  Food restriction remains in place so even if I could go to a restaurant (I can’t), what would be the point?  My life now is small and getting smaller. Everyone reassures me that once I get a hip, a life rich with prospects will re-emerge.  I hope so, but I fear otherwise.  I recognize the dangers of that fear. It’s incredibly easy for me to slip into despair and to wonder if any of these doctors who swore an oath to do no harm actually give a damn about me.  In this case, actions speak louder than words, so I know the answer.  

Still, I try to choose hope.  For my Christmas stocking, I bought myself a mystery box from my favorite jewelry shop.  Inside the box was a tiny silver ring engraved with the words “I Am Worthy.”  It feels like the universe delivered this timely reminder just when I needed it.  Being required to lose weight to qualify for necessary medical care is demeaning and demoralizing; a daily reminder that my needs matter less and that I am not worthy in the eyes of some doctors.  I play a waiting game for medical care denied me because I am fat; it’s a game that makes me feel that I am not worthy at all. So I slip my silver talisman on my finger and struggle onward.

Among the Trees: January 5

The woods around me are quiet as Winter takes hold.  A Nor’easter is forecast for the weekend - our first prospect at real and significant snow in nearly two years - and I continue to wait for word of when my hip replacement surgery will be scheduled.  Without the hip, mobility is a challenge for me.  I miss the ability to walk at all, but especially to walk outside in the Winter woods.  Without a surgery date on the horizon, I don’t think that February will find me able to make the solitary Winter walks I used to enjoy.  I have great hopes for March forays into the trees.  For now, the backyard dogwood branches remind me that even in Winter’s cold, Mother Nature is making plans.   

A Wish for Peace

The last few months of 2023 were rather a shitstorm, both personally in terms of my health and in terms of world affairs.  The October 7 Hamas attack and the devastation in Gaza that followed has been heartbreaking.  Explaining it and discussing it with my idealistic and hopeful 8th grade history students has been extraordinarily hard.  My own reserves are spent thanks to my deteriorating hip and the ways in which I am disabled by it.  As a woman who thrives on her independence, I have not handled the waiting with any kind of patience or dignity.  Even as I understand that anger will not help, I yield to my fury more than I should.  When I found this lovely tag among my Christmas wrapping collection, it spoke to me on so many levels. 

As I continue to play a waiting game for my hip replacement and prepare to return to school next week, this tag will be my mantra and a reminder to control what I can control and to be the master of my anger, not mastered by it.  

January 1: A Cardinal Year

It’s no secret that my Dad was a huge fan of the St. Louis Cardinals and his love of a team with a scrappy, mean bird as a mascot is rather a funny thing.  My Dad could be scrappy but he was never mean.  His affection for the team dated back to his childhood and it never wavered.  Even when his team was struggling, Dad maintained hope that the game - and the season - could be turned around.  Some of my greatest joy in life is found in memories of the conversations he and JT had as the Cardinals - by then JT’s team - won an improbable pennant and then World Series in 2011.  The sight of a cardinal has always reminded me of my dad and all his best qualities: his liberal politics, his sense of humor (and exquisite timing), his skill with profanity, his joy in his grandsons.  With his passing in 2023, the sight of a cardinal feels like my Dad is at hand, counseling patience as I wait for my new hip, condemning ignorance and stupidity, or shouting “Jocko” when there is flubbed play at sport.  In 2024, the first of each month will be devoted to cardinals in all their forms in my world.  First up is this Christmas gift from my sister.  

It will be hung over the doorway between the kitchen and the living room, keeping watch over my home and reminding me of my dad.